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Aug. 24th, 2007

Well now.

I got diagnosed today. The neurologist believes I have fibromyalgia. This has yet to be confirmed, but he seemed damn certain, and I must say that the literature he gave me, combined with some reading I did on emedicine does really suggest he's right. The symptoms include muscle pain, but often in 18 specific places. I have pain in most of those places. Another symptom is pins and needles or numbness in extremities. Check, went to the doctor for it last Friday. You don't want to know this, but irritable bowel- check. Fatigue, let's all chorus CHECK at the top of our lungs shall we? Feeling weak- check. Disrupted sleep patterns- a check and a half. And fibrofog, or periods of the mind being disoriented, confused and unable to concentrate. And sometimes short terms memory lapses- Check check check and check.

I'm not 100% certain as he diagnosed me in about thirty seconds. crazedturkey, my Doctor to English interpreter, described it as "Doctor in a Candy Store". I say yes to every symptom, the theory is right, YAY!!! My GP, Psychiatrist and others will have to confirm the diagnosis.

The good news: it's not at all fatal. And the symptoms appear to be the only complication. It's not doing anything to kill me.

The bad news: it's manageable, it's treatable, but it is not cureable. This can mean you're stuck for life, or repeatedly relapse. Also, it may make me prone to viruses.

The good news: I know someone who has it. I know her very well, but I shan't "out" her here. That's her business. But it's good to know I can talk to someone who's already been dealing with it.

The bad news: I can expect the fatigue to go on and on, which is a bit of a bitch in terms of planning to start studying or getting a new job. Until I know more, full time work seems a bad idea.

The good/bad news: It's classified as a Disability. I can't tell if this is good or bad. The bad is that this suggests the syndrome is fairly serious. But it's good because if I do have study or work problems, a recognised disability makes it easier to get help.

The excellent news: Not a brain tumour.

PARTY ON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

My MRI yesterday came up negative. I'm tumour free. And the MRI machine is COOL!!! It makes a lot of noise, but I LIKED the noises. It's like a bad 50s SciFi film soundtrack. Kicks arse.

Tomorrow, I'm going to the Open Day at University of Canberra. flippyfrog and her mother talked me into it. Jen and Gill's mum is a nurse and she encouraged me to have a look at the nursing courses at UC. I'll also have a look, while I'm there, at Primary and Early Childhood Education (there will be no Secondary students for me). And I'll go to the postgraduate question booth, to see if my previous degree is any good at all. Better not tell them I went to the ANU. Might get stoned to death in the concourse.

Yes, yes... I know I said if I ever think about going back to Uni, ya'll can kill me, and even that no court would convict you. Once I've been to the Open Day tomorrow, perhaps I will explain.


( 4 comments! — Make Remark! )
Aug. 24th, 2007 10:27 pm (UTC)
They won't stone you, they'll go "ha! moving across, are you? finally worked out we really are the better uni."

gluck with it, lemme know how you go, and if you get bored, you can always swing past my work and say hello :P
Aug. 25th, 2007 01:29 am (UTC)
Fantastic news!Well, not about the being sick thing but not a brain tumour! And it's managable, which is always handy. :)
Aug. 25th, 2007 10:41 am (UTC)
A diagnoses! That is good news, though not about it being uncureable :/ At least you now have some idea of what it is, and know that you're not dying!

Aug. 30th, 2007 11:48 am (UTC)
Sorry for the delayed reply, good Kayt, I meant to reply to this ages ago, but I haven't had a chance to read it properly until now.

It's great to hear that someone has managed to put a 99% sure finger on it all for you! Manageability is always a good thing.

And good luck for your uni choices! You could always do a TAFE course for childcare or something, to see if that's for you.

( 4 comments! — Make Remark! )

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